Details about the Organisation
OACS (Organisation for Anti-Convulsant Syndrome) were created to support those families with children that have been prenatally affected by anti-epileptic medication. O.A.C.S was established in January 1999 and became a registered Charity in 2006. Fetal Anti-Convulsant Syndrome is a complex disability which includes congenital abnormalities, autism, learning difficulties, poor muscle tone amongst many other problems.
It is not known as to why some mothers are susceptible but it is believed that it may be due to a genetic disposition. We are a proactive organisation creating initiatives in order to develop a greater awareness of FACS, whilst generating opportunities that will support these families. The challenges these families face are unique3; they are often single parent families (parent cares for the disabled child, who in turn has to care for their disabled mother). With the drug sodium valproate it is now recognised that there is a 30 – 60% likelihood that the mother has a disabled child (depending on the amount taken). If one child has FACS there is a 55% likelihood of having a second child with the syndrome.
Details of Volunteering Opportunity
OACS are looking for a team of fundraisers to organise and run a fundraising activity. The Volunteers will be required to co-ordinate, organise and manage a fundraising project. Ideally this would be an activity that generates a greater awareness of FACS.
Hours to be negotiated. Travel expenses will be reimbursed
Skills required for the volunteering opportunity
- Strong organisational skills
- Good team working
- Commitment to manage a project with lots of enthusiasm.
- Creativity – ideas generation
- Motivate others
Benefits to the volunteer
All volunteering hours will be added to your HEAR
You will receive an induction course about feta anti-convulsant syndrome and the activities of OACS.
Other training opportunities may be available