OACS (Organisation for Anti-Convulsant Syndrome) were created to support those families with children that have been prenatally affected by anti-epileptic medication. O.A.C.S was established in January 1999 and became a registered Charity in 2006. Fetal Anti-Convulsant Syndrome is a complex disability which includes congenital abnormalities, autism, learning difficulties, poor muscle tone amongst many other problems.
It is not known as to why some mothers are susceptible but it is believed that it may be due to a genetic disposition. We are a proactive organisation creating initiatives in order to develop a greater awareness of FACS, whilst generating opportunities that will support these families. The challenges these families face are unique3; they are often single parent families (parent cares for the disabled child, who in turn has to care for their disabled mother). With the drug sodium valproate it is now recognised that there is a 30 – 60% likelihood that the mother has a disabled child (depending on the amount taken). If one child has FACS there is a 55% likelihood of having a second child with the syndrome.
Details of Volunteering Opportunity
OACS are looking for someone who can write grants and apply for funding. You will be writing grants for a small rare disease patient led charity, seeking to improve the lives of families whose members are affected by Fetal Anti-Convulsant Syndrome. OACS has a clear vision for the future and strategy for our future development. A funding strategy will need to be needed in order to make this happen.The applicant will work with the secretary in order to identify appropriate grants. They would be expected to develop a detailed reporting process and help to coordinate the submission process for new applications to ensure a significant and predictable income base. The volunteer would be involved with the preparation of high quality funding proposals, including logical frameworks and budgets as required, ensuring that donor requirements and guidelines are understood and met
To develop a portfolio of grants and timetable to ensure that trustees are aware of funding opportunities and deadlines.
Maintain an accurate database of current and prospective donors, funding applications and their outcomes.
It may be necessary that you attend some networking opportunities.
Hours to be negotiated and are flexible and the role will be home based
Travel expenses will be reimbursed
Good standard of computer literacy (Word, Excel)
Excellent writing skills with the ability to wite clearly and concisely
Good attention to detail
Strong organisational skills
Ability to plan and work within agreed timeframes
Ability to demonstrate initiative and work well under pressure
Ability to understand and generate budgets
Benefits of the role to volunteers
- All volunteering will be recorded onto your University profile and contribute to your Brunel Volunteers Award and HEAR.
- You will complete an induction course aimed to give you a clearer overview of FACS and you will be trained to learn about the rare disease sector.
- OACS will seek out training opportunities regarding funding and grant making.
- You will have compiled a portfolio of work which will be able to help your future ambitions and goals.
Interested? Apply below for an application form :